This beautiful work of art is called "In His constant care" I saw it at Costco today and I found myself speechless. At first my heart was broken because the piece was very expensive. I inquired at the name of the painting and the representative showed me where some smaller versions of the print could be found. I knew it would be coming home with me.
This painting speaks to me--for obvious reasons, I would think. It is such a contrast to my visit to the OBGYN today. It's amazing to me that Brooklyn has been labeled a "Trisomy 18 baby". I think my OB referred to Brooklyn by that label at least 3 times. Twice to the PA student and once to the hospital staff as he was scheduling my induction. And every time he did this he gave me a 'reassuring smile and a couple winks. "Courtney's baby is a Trisomy 18 baby," he would say, "We don't expect her to do very well," And he went on to discuss an earlier induction and complications that don't concern him like being born breach and other things that he's not worried about because "she's a Trisomy 18 baby". And I apologize if this next sentence seems insensitive but you wouldn't write off a person for being diagnosed with terminal cancer. You and your family would most likely pursue some kind of treatment. I don't see how Brooklyn's situation is any different. She has a dire diagnosis but as far as I'm concerned she deserves a fighting chance. You can never predict what will happen everything is in the Lord's hands. And yes she does have trisomy 18 and her heart is defective and no one expects her to live very long---but I will not stand by and do absolutely nothing. I will do my best to get that little girl here safe and sound and care for her as long as her short life will allow.
It's appalling to me the things my Doctors say to me. If Brooklyn didn't have a terminal diagnosis the doctors wouldn't DARE say half of the things that they think they say to me. I know that it's a difficult situation for doctors to be in, how sensitive and how honest should you be? But really. Try to be a little more sensitive when you are talking about someone's loved one. It's not a baby. It's MY baby. SHE is my little girl. Her name is Brooklyn. And her birthday is tentatively June 2nd 2013. I just wish that they would realize that.
Two more visits and an induction and then I am never going back to this OB as long as I live.
Anyway. Enjoy the picture. I really will upload pictures or videos or both of Bentley next time. Cross my heart.
Hug your kids and hug your spouse--and everyone else you love
Courtney
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